Hi Everyone!
It has been a few months since my last blog post and I thought I would give everyone an update:
–A little background—I started this journey 9 years ago when I was initially diagnosed with FSGS which was later correctly updated to a diagnosis of Alport Syndrome, a genetic kidney disease that basically destroys the filtering membrane on your kidneys and over time causes kidney failure. For years, I thought I could keep it at bay by diet and exercise but it wasn’t to be! So, 2 years ago it was determined that I would need a kidney transplant some day, it is just happening sooner than I expected.
–Update–After some additional testing in January and early February it has been made clear that my kidney function continues to decline at an accelerated pace. Therefore, the doctors have all agreed it is time to schedule the transplant!
–I am so very fortunate to have an awesome friend, human being, who has stepped up and is willing to give me the gift of life as Shawn has done! This is such an amazing and selfless act that no words can adequately express how thankful and appreciative I am.
–It is so ironic that through the tragedy of the death of my son, Matthew, I have met so many caring, selfless, amazing human beings that I now call my second family. And, on top of that several came forward willing to be tested to give me one of their kidneys!
–Shawn went though all of the extensive tests and meetings with a smile on her face, never complaining and always telling me calmly that she is ready!! Shawn is a true real life hero because she is saving my life and I will be forever in her debt!
–So, the date is set! Kid TNT will be born on March 1st, 2017!! And, I will get a new lease on life!!
How amazing is that?
Until next time!
I WILL NEVER QUIT!!
Gary
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