Hi everbody!

I want to start by looking back on 2015 and summarize all of the major milestones that have happened regarding my kidney disease:

-In May, I was told by my Nephrologist that I should begin looking into getting on the kidney transplant list due to my continued reduced kidney function

-Throughout the year I got tested and I got myself on 4 transplant lists in 4 states, NY, Conn., NJ, and PA!

-In July, I became aware through a genetic blood test that my daughter and I both have Alport Syndrome, a genetic kidney disease.

-In September, 4 awesome friends that I have met through tragedy (Team in Training) offered to be living donors for me (totally amazing!!)

-In October, I ran the Marine Corps Marathon with my potential donor, Shawn!!

-In October/November, Shawn Hoppe got tested and became my primary donor and I have 2 back-ups!!

-In early December, I met the testing criteria to be placed in a 2 year study for Alport Syndrome which could benefit me by giving me a chance to try experimental drugs at the end of the study or at the very least, I will help others including my daughter based on my participation!

I must say that this has been an amazing year! I started the year with major concerns regarding my disease and it only got worse when my Dr. told me I would need a kidney transplant in the next 2 to 10 years! If that was how the year would end, it would have been a pretty tough year but still nowhere near as difficult as the year I lost my son!!

BUT, it didn’t end there! Instead, I successfully got on all of the transplant lists I targeted, I got into  the study for my disease I so desperately wanted to, and last and most importantly, I learned what amazing friends I have through Team in Training! To offer to donate the gift of life through an organ donation!! This has given me HOPE, a bright future, and taught me that there are unbelievable friends out there that are willing to go the distance for me!!

I would say I had a pretty good year!! wouldn’t you?

I am truly looking forward to the new year and see what life has in store for me and you!!

Happy New Year to all!!

Until next time,

I WILL NEVER QUIT!!

Gary

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